It's getting worse. I'm finding it increasingly difficult to think. I can't seem to get out of this fuzzy dream-like state. I can't even explain it properly. Maybe that's why it's so isolating, feeling like this. I can't put into words how i feel. I know that there are other people on Earth who feel it too. But there is no one in my life who can truly understand how i am feeling.
For me, dizziness and vertigo are the worst symptoms of MAV. I guess really, i should be grateful that they have not got worse. Even though it's not easy for people to imagine what it is really like to live with dizziness almost all the time, everyone has experienced dizziness/vertigo at some time in their life. Because of this, if the only symtom i got from MAV was dizziness, at least more people would be able to relate to me, even just a little bit. But what i am feeling now, what i have felt every morning i have woken up with for the last 9 weeks, is almost unexplainable. I've never met anyone (other than people on forums) who has felt this too, and can tell me that they truly know how i feel. I can't think of anything more isolating than that.
If anyone asks what it feels like, if someone tries to understand and relate to me, i find myself reaching out to them, desperately trying to tell them. I want someone to listen.
I'm going to try again to do my coursework. It's unbelievably difficult to concentrate because i feel like i'm not really here. I feel distant from life. But i won't give up. If it's the only thing that i achieve this year, i will get an A in health and social care.
Tamsin, I can really relate to your feelings of frustration and isolation with this disorder. When I tell people what I've been diagnosed with they just think "oh, so you get dizzy sometimes" What they don't realize is that we have 24/7 varying degrees of dizziness, imbalance, floating sensations, feeling out of it. It is very draining on us physically, mentally & emotionally. I would give anything to just feel "normal" again. I would love to not have this condition totally consume me. It is so hard to articulate just how bad this is to someone who has never lived it for even 1 day. I'm not giving up either though! I hope you find the right medical help and get the support you need to start feeling better.
ReplyDeletehey babe, i don't know if I can totally relate to this symptom, but feeling isolated and like no one understands, I def can. you just have to remember that we're all here for you xx
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