I was doing well today. I have got pretty good at ignoring the dizziness as much as i can... Because i don't want my whole life to be about MAV. But when i was walking to french today, i got the fuzzy dreaminess again. As soon as i felt it, i just felt so tired. I have ran out of physical and emotional strength to deal with this right now. I honestly feel like i could sleep for a month... And if i did that, when i wake up, would i still feel it?
It seems like the whole thing has just got worse recently... And the truth is, i am scared that i'm not going to recover from my relapse. It's been 7 weeks and so far, no positive changes.
I'm not asking for a miracle cure. I just want to be able to live my life easily, easy like it used to be. I want control. I need to learn to manage my symptoms again. But how can i do that without the right support?
Me, and thousands of other people out there have had our lives changed dramatically by MAV/vestibular disorders. What we have to live with, is frustrating, scary and exhausting. But even though it's like this... I don't wish this didn't happen to me. Having MAV has changed me, and in a good way. Not only have i become a stronger, more appreciative person, i have also developed the ability to empathise with others. And it's inspired me. I will learn to manage my symptoms, and i will do a degree in occupational therapy. And when i become an OT, i will be able to use what i have learnt from having MAV to help other people whose lives have been thrown by illness. And because of what i have been through, i will be able to empathise more than any doctor, audiologist, neurologist i have ever met.
It's so wrong how many health care professionals lack understanding and empathy for their clients... It doesn't make sense to me why so many people are so blind.
I can count on one hand, the number of people i have met in my life who can empathise with me, and others like me. I am grateful to them. It feels nice to talk to someone who just... Knows.
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