It's difficult to say when it all started. Things haven't felt right since i was about 9, but it wasn't bad enough for me to really notice it back then. But when i was 12, it started getting dizzy more and more. It wasn't even that long ago, but i can hardly remember how i felt. All i knew, is that suddenly things weren't normal anymore.
I was not listened to. I don't know how many times my mum took me back to the doctors. I finally got my referral to a specialist, who wrongly diagnosed with Labyrinthitis, which is a type of vestibular disorder.
Labyrinthitis is meant to go away after a few months, but for me, it just stayed. I didn't like it, but i just put up with it. It messed up my attendance, but it wasn't there all the time. I could go 3 weeks without really being affected by it.
Since i was 14, it's got worse every year. When i was in year 11, it completely changed my life. Suddenly, everything had changed. I was struggling to deal with it emotionally... Even though i had suffered from all of those symptoms for years, it was never that bad before, and it was starting to stop me doing things.
On top of the dizziness, i got a lot of blurred/jumpy vision and i was so tired. A lot of the time, i just felt strange. I can't explain it, but everything was dream-like and wrong. I ended up being unable to do PE because it just increased the dizziness, and i could hardly do a full week at school. I was worried about failing my GCSEs. I think the thing that i found most difficult to deal with was how it made me feel completely out of control, misunderstood and alone. I also started getting anxiety. At one point, i think i even become a bit agoraphobic. I was scared of going out alone because i had no idea when i would get dizzy, and if it happened while i was alone, there would be no one to help me.
Will finish this later. It's getting too long.
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