The fact that I have never had a definite diagnosis has always affected me. I don't know what to tell people when they ask. How do you get the support you need when you don't have a diagnosis to back it up? It's so much easier for people to accuse you of faking your symptoms, when all you have is symptoms, and only a name of a disorder that you think you could have, without the confirmation of it in your medical records. Maybe that is why I have never been able to give up searching my symptoms on the internet, trying to find other people who are experiencing the same thing as me. I remember an Audiologist telling me to stop researching my symptoms because she thought it would draw too much attention to them. But I'm sure that if she had of been in my position, she would have done exactly the same thing. If you are not given the answers and the help that you need, the only option is to find them yourself.
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